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2019.pdf

CF-2019_Newsletter_06.pdf
Preview of 2019
🔗 Source: canavanfoundation.org
📊 Size: 585 KB
📄 Pages: 2 pages
⬇️ Downloads: 41

Summary

The Canavan Foundation has been working with Aspa Therapeutics to complete a natural history study of Canavan disease, a crucial step in developing a treatment trial. Aspa researchers have found that intravenous administration of gene therapy is the best method, which is less invasive and safer. The foundation has also been distributing brochures to healthcare providers and synagogues to raise awareness about genetic testing, with over 40,000 brochures distributed in 2019. A new natural history study, CAN-Inform, is now open and seeking participation from Canavan families. The foundation is grateful for ongoing support and announces its 2020 theater gala, a production of Stephen Sondheim's "Company", on May 5th.

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Description

The Canavan Foundation has been working with Aspa Therapeutics to complete a natural history study of Canavan disease, a crucial step in developing a treatment...

Technical Information

  • File Format: PDF
  • File Size: 585 KB
  • Pages: 2
  • Language: EN
  • Total Downloads: 41
  • Last Updated: 1 month ago

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This PDF document about 2019 provides comprehensive information and guidance. Whether you're a beginner or advanced user, this resource offers valuable insights into 2019.

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