Annual Report 2020.pdf

1670225274_c4bb-jaarverslag-2020-final.pdf
Preview of Annual Report 2020
🔗 Source: cdn.geef.nl
📊 Size: 4.35 MB
👤 Author: Dagmar.Mekking
⬇️ Downloads: 155

Summary

500,000 people worldwide have Osteogenesis Imperfecta (OI), with 5,000 in Germany, 4,000 in the UK, France, and Italy, and 1,000 in the Netherlands. OI is one of 7,000 rare diseases, with some children breaking a bone 10 times a year and people with OI breaking over 200 times in a lifetime. 8,500 babies are born with OI each year, and there are no medications specifically developed for OI. Care4BrittleBones raised 112,882 EUR in 2020 for OI research and spent 134,068 EUR on goals such as research, information sharing, and collaboration. The organization had 150 volunteers, 23 workshops and events, and an overhead of 9.4% and fundraising cost of 11.3%.

Description

500,000 people worldwide have Osteogenesis Imperfecta (OI), with 5,000 in Germany, 4,000 in the UK, France, and Italy, and 1,000 in the Netherlands.

Technical Information

  • File Format: PDF
  • File Size: 4.35 MB
  • Pages: 53
  • Language: EN
  • Author: Dagmar.Mekking
  • Total Downloads: 155
  • Last Updated: 11 hours ago

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