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THE PATIENT REGISTRY: A HIGH IMPACT TOOL FOR REAL WORLD EVIDENCE.pdf

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Preview of THE PATIENT REGISTRY: A HIGH IMPACT TOOL FOR REAL WORLD EVIDENCE
🔗 Source: ijmrhs.com
📊 Size: 143 KB
📄 Pages: 5 pages
⬇️ Downloads: 46

Summary

Patient registries are organized systems that collect uniform data to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure. They serve scientific, clinical, or policy purposes and are useful for various stakeholders, including pharmaceutical companies, payers, healthcare providers, and patients. Registries can assess a product's effectiveness over time, understand safety and efficacy profiles, and provide data on health-related quality of life and health economics. The key benefits of patient registries can be organized under the mnemonic TEAM: Track the natural history of disease, Evaluate clinical or comparative effectiveness, Allow stakeholders to have evidence-based data, and Measure or Monitor the safety profile. However, low awareness among the public and policymakers is an impediment to their wider appeal and utility, and incorporating them into the standard global healthcare system would require setting up a regulatory framework.

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Patient registries are organized systems that collect uniform data to evaluate specified outcomes for a population defined by a particular disease, condition,...

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  • File Format: PDF
  • File Size: 143 KB
  • Pages: 5
  • Language: EN
  • Total Downloads: 46
  • Last Updated: 2 weeks ago

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