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Rare Disease Day.pdf

Hemo-News-4-Mars-2016-V.def-engl.pdf
Preview of Rare Disease Day
🔗 Source: efaph.eu
📊 Size: 1.36 MB
📄 Pages: 4 pages
⬇️ Downloads: 392

Summary

EFAPH participated in the 2015 Rare Disease Day through its 12 European member countries, with examples in Germany and France. Margaret Mullett, Chair of the Irish Haemochromatosis Association, won the Silver Surfer Award 2015 for raising awareness of hereditary hemochromatosis. The 2015 AGM in Cologne was organized by the German HH-Association HVD, with active participation from Haemochromatosis International. A scientific conference discussed clinical and practical aspects of HH, with working groups set up on blood donation and arthropathy. EFAPH joined EULAR and will participate in several events in 2016, including the launch of the ERN on Rare Haematological Diseases and the European HH week.

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Description

EFAPH participated in the 2015 Rare Disease Day through its 12 European member countries, with examples in Germany and France.

Technical Information

  • File Format: PDF
  • File Size: 1.36 MB
  • Pages: 4
  • Language: EN
  • Total Downloads: 392
  • Last Updated: 2 weeks ago

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