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Rare 2030 And Rare Barometer Surveys.pdf

Rare2030_recommendations.pdf
Preview of Rare 2030 and Rare Barometer surveys
🔗 Source: download2.eurordis.org
📊 Size: 23.92 MB
📄 Pages: 123 pages
⬇️ Downloads: 166

Summary

The Rare 2030 foresight study proposes policy recommendations to improve the lives of 30 million people living with rare diseases in Europe. The study, led by EURORDIS-Rare Diseases Europe, gathered input from patients, practitioners, and key opinion leaders to prepare for the future of rare diseases. Eight recommendations are outlined, including long-term integrated plans, earlier diagnosis, access to high-quality healthcare, integrated care, partnerships with patients, innovative research, optimized data use, and available treatments. The study aims to guide rare disease policy in Europe for the next ten years and beyond, building on the progress made since the 2009 Council Recommendation on European Action in the field of Rare Diseases.

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Description

The Rare 2030 foresight study proposes policy recommendations to improve the lives of 30 million people living with rare diseases in Europe.

Technical Information

  • File Format: PDF
  • File Size: 23.92 MB
  • Pages: 123
  • Language: EN
  • Total Downloads: 166
  • Last Updated: 1 month ago

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This PDF document about Rare 2030 and Rare Barometer surveys provides comprehensive information and guidance. Whether you're a beginner or advanced user, this resource offers valuable insights into Rare 2030 and Rare Barometer surveys.

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