Family Caregivers.pdf

Family caregivers are not adequately addressed in terms of theoretical input, legal regulations, and collaboration models. Key aspects such as national available legal and financial support, and the condition and respective support of informal caregivers are lacking. However, some existing networks and theoretical input are briefly discussed, particularly in the nursing care sector.

The needs and roles of family caregivers, including those parenting a sick child, are not fully recognized. Their health status, expertise, and involvement in care situations are not adequately addressed. Some educational institutions offer optional teaching modules on family-centered care, which include educating informal caregivers and assessing their needs.

Specific courses, such as MSc Nursing with a focus on systemic family approach and midwives integrating family caregivers as partners, are available. Students working in outpatient settings during internships have the most experience collaborating with informal caregivers. Research on informal caregivers is sporadic, with some BSc and MSc theses available. Overall, there is a need for more comprehensive discussion and support for family caregivers.